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  • Started 10 years ago by wallis

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  1. wallis
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    me and it's getting kinda scary. THe Doctors believe I've had RSD for about 2 years now but things are changing for the worse now and very fast. The burning pain never stops and it has spread. I have full body RSD and I have trouble with internal organs now as well. They are really concerned and quite interested in me because everything has UGGS Clearance now been affected by this terrible disease. The burning pain is getting worse by the UGGS Outlet week and I have more trouble sleeping and eating which keeps getting worse. My memory and concentration is just awful and my vision keeps changing. My vision has changed now 4 times in less than a year! I am losing sight in my right eye and the eye lid is swollen and looks droopy. My vision is blurry most of the time and glasses are pretty much worthless. I see the same with or without them.

    What's getting really scary now is that I'm losing function of my right hand. It's swollen most of the time and I can't even close my hand to make a fist. I can't pick up an empty soda can with it most of the time. I am now having trouble walking, especially when I'm in a huge flare. I have awful spasms, legs feel weak and my knees will just give out on me at times. I have a hard time getting up steps. I'm falling apart and I'm scared.

    I'm just curious if any others progressed rapidly and were you able to slow it down? I tried a bath last night to help relax and then I didn't sleep all night. UGG!

    Take some really deep UGG Boots Clearance Outlet breaths and release the air slowly do this several times. It helps me relax even at night when I am having trouble sleeping. There is relief and your anxiety is normal. I have had RSD for 9 years the last 7 have been fullbody with lungs and heart involved. Mine spread quickly and it was very scary at first.

    I love the pool. The cool water puts the burning out and the exercise is good for me. I water walk my lungs don't function like they should so I can't put my face in the water to swim. I then get in the warm pool at the Y and take an arthritis class this keep the joints working. I went to Dr. Schwartsman in Philly (an RSD specialist) he said the pool excercise is a must and he UGG Boots Clearance Outlet also agreed that my chiropractor (he an activator doctor he doesnt use his hands) is the best thing I can do for myself. All our nerves run through the spine keeping is aligned keeps the nervous system working better.

    When the nerves in my mouth are flaired I drink room temperature liquids and eat yogurt. Ice cream is too cold for me and yogurt helps put the fire out.

    I take Ativan for anxiety .5 mg twice a day this really helps. Anxiety is an agrivator for us RSD'ers

    Now for the best thing is my treatment plan. I PRAY prayer has saved me from myself. The Bible tells of a a peace that passes all understanding. God will cover you with it when I finally gave my worries and doubts to him he lead me to the doctors who help treat me. I may never ever go into remission but I can manage my quality of life so much better because of him. If you are not a christian please contact someone you know that is or v

    Posted 10 years ago #

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