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  1. "Getting cold" and Wang Xiufeng and mother sitting in front of the old coffee table, and looked calm. 30 years ago,hogan rebel, black and white photo,http://1973523.info/cgi/memo/apeboard_plus.cgi/, Xiufeng mother holding less than two years old, life is full of hope.<br>30 years ago, a black and white photo, 25 year-old mother holding less than two years old son Huyun Rong Wang Xiufeng, happy, smiling, life is full of hope; 30 years later in Linyi City Yinan, a remote village, Huyun Rong already gray-haired, 32-year-old has 80 pounds of body weight is not to Xiufeng with his mother sitting in front of an old coffee table, he looked quiet, waiting for death. All this stems from a product called amyotrophic lateral sclerosis (ALS) of motor neuron disease, is commonly known as "getting cold" disease. Wang Xiufeng suffering from the disease almost the whole body muscle atrophy, paralysis, but do not feel any pain fully awake,http://liaoningrenshikaoshiwang.com/read-htm-tid-1049337.html, conscious. He said he is "the soul of the puppet, awake waiting for death." Wang Xiufeng said he hoped the death of the body and so be able to donate as a medical research to find a cure for getting cold.<br> <br>Edition text / Chart Shandong Chinese Commercial News reporter Ji Qiang & nbsp; & nbsp; Shandong News intern Wang Zhen<br> <br>Stopped short of<br> <br> Happy life<br> <br>Time is traced back to 1992. That one morning in the fall, the 13-year-old Wang Xiufeng positive and classmates on the playground running, suddenly without warning once again fell to the ground, and he fell heavily together, there is a happy family.<br> <br>"At that time I did not care how, after listening to the teacher said the children often fall when running,Piumini moncler outlet, we took his son back to the house, let him rest for some time." Wang Xiufeng's father recalls. He said that until the harvest busy, he took his son to the hospital. "In the Yishui, Linyi hospital, doctors say can not cure,http://www.uco.es, but did not tell us is Shabing." With anxiety and doubt, Wang took his son came to Qingdao, a naval hospital, "it is in there, Red Liang (Wang Xiufeng nicknames) was diagnosed with amyotrophic lateral sclerosis. "<br> <br>"My child is sick, no matter how much money to spend, and we will be for him to see a doctor." Although more than once so bitter seek a doctor, but in return is once again disappointed. Wang Xiufeng Hu Yurong mother said, after a period of time in Qingdao hospital treatment, the family is destitute, but also owed a lot of debt, after a period of treatment, the doctor told said Wang Xiufeng of how much money can not cure the disease, and He advised us discharge formalities as soon as possible. "Really a Tiantadexian despair ......"<br> <br>After returning home from Qingdao, almost overnight become gray hair, Wang also feel the pressure is too large, large truck drivers quit the job, a person's happiness have become the breakpoint.<br> <br>The body gradually frozen<br> <br>Mood gradually calm<br> <br>In the following days, the king visited the school with his son and other places of Beijing hospital, but invariably disappointing harvest. They tasted the various folk remedies, the body still in the deteriorating condition of Wang Xiufeng, 1995, Wang Xiufeng has completely lost the ability to stand and walk, can only sit on a day Mazar. & Nbsp;<br> <br>In the legs after being gradually "frozen", Wang Xiufeng upper body also began to lose control. "First think Meijin Er, and then began to slowly lift the arm up, could not move the." Wang picked up his son's arm pale said. Up to now, Wang Xiufeng limbs have been almost entirely lost the activity, neck only a small range of activities, the pronunciation tongue began to vague up ......<br> <br>"The body is getting worse, but my mind was slowly want to open." Sat curled on a Mazar, Xiufeng struggling out a little smile he said. Reporters learned that,http://tanfukubaken.seesaa.net, in quite a long period of time, in order to save money to cure his son, Wang and his wife Huyun Rong in the teeth to pull out money. In 2001, eventually becoming effective and the disease increasingly heavy Xiufeng began to abandon treatment. Wang Xiufeng said that in order to cure himself, had a few people all live in low earth house, winter cold people shivering. "I may not live much longer, but my parents still healthy, still young, I can not bring myself to the family caused the collapse, as they have to think about posterior."<br> <br>For three days knocked Thousand Tears of Blood donation remains posts<br> <br>"Do not look bright red on the fifth grade, but he was smart way to go. If nothing happens, then,http://zazna.com/selection/index.php?item/create_form/1, he would like you to become college students." Son sorted out a little slip of waistcoat, Wang quietly behind his son He wiped a tear. Say this, Xiufeng has gradually begun to shrink face stiff remained calm, perhaps it is difficult to make a face action, perhaps did not want to speak in front of the broken heart of parents reveal anything.<br> <br>In order to make their lives not completely boring boring, the second half of 2009, Wang Xiufeng parents made a request to buy computers. Initially, parents were opposed, but listen to his son that they want to use computers to "learn a lot", the Wang and his wife decided to meet his son's request. "That year the family food, chicken, sheep, what are sold, there is taking advantage of subsidies for home appliances, spent 2600 dollars to buy this computer." Wang said: "buy a computer to have to end , the bureau said nothing to pick lines, that we wait for next year to say. But when they listen to the children after my introduction to the case,hogan outlet sito ufficiale, the staff at the day of the twelfth lunar month 27, made an exception to our door to connect the network cable. "<br> <br>After the October 22 day, Wang Xiufeng registered ID called "Thanksgiving social heart" on the Internet made a thousand-word message, he said to donate their corneas and body. "In order to fight these words, I rang the front of the computer for three days." Wang Xiufeng said that in the help of others, he has no feeling in his left hand to do support, with the right hand only two little fingers slowly sentient typing. "The most distressed deleting the wrong word, a word to be spelled sometimes several times in order to succeed."<br> <br>"I have no ability to return to society, people want to donate corneas to need, if there is little use for the study of disease in people getting cold, I would like to donate bodies for medical research." This is the 32-year-old "gradually freeze people" Wang Xiufeng greatest desire. Provincial Red Cross has responded that, to meet the donor cornea and remains Xiufeng requirements.<br> <br>"Basking in the sun, sipping tea, very beautiful."<br> <br>To be "frozen" in a Mazar, life is difficult to take care of themselves, even eating and sleeping on the toilet to be someone to take care ...... Even so, Wang Xiufeng was found alive pleasure from this life.<br> <br>Reporter: Usually during the day mainly do?<br> <br>Wang Xiufeng: listening to music, watching TV to pass the time, and then you sit here and drink tea. I like tea, so basking in the sun, sipping tea, very beautiful.<br> <br>Reporter: mainly listen to what song?<br> <br>Wang Xiufeng: folk songs. I like to listen to Tan Jin song, but I sang out. & Nbsp; & nbsp; & nbsp;<br> <br>Reporter: so many years can not move, there is no feel despair?<br> <br>Wang Xiufeng: now want to open,moncler outlet.<br> <br>Wang: 2004 winter, he out of the toilet, knocked over a bucket of water, fell to the ground almost froze to death. When I came home, he dropped to the ground unable to move, the water began to freeze up, while home late, then it is finished.<br> <br>Reporters: for the disaster area to donate so much money, who is the idea?<br> <br>Wang Xiufeng: our family (the idea).<br> <br>Wang: When afraid that others had contributions to make irresponsible remarks, we are anonymous donation. Later, the Civil Administration must I leave name, then do not know how to find my home address of.<br> <br>Wang Xiufeng: now people are checked with a computer.<br> <br>Reporter: When did the idea of some donated body?<br> <br>Wang Xiufeng: a long time, but has dared and parents say, for fear that they can not accept.<br> <br>Reporter: Why do you think so?<br> <br>Wang Xiufeng: dead, cremated became gray, can not help. If the dead can help people, so much the better. I also wonder about their disease, want them (doctors) study my body and find a way to treat this disease.<br> <br>Reporter: very great.<br> <br>Wang Xiufeng: I want to understand.<br> <br>Reporter: What is the main message was sent to?<br> <br>Wang Xiufeng: is looking for a place to receive the remains, I asked our county that can not handle the donated body procedures. Do anything,http://pcppe.com/home.php?mod=space&uid=34802, I had to go ask someone else posted online. (Added) and now my body every day poor, like good contact as soon as possible.<br> <br>Bedside every year stickers<br> <br> "Healthy body"<br> <br>They donations for the disaster area<br> <br>Probably more than you<br> <br>Although a variety of drugs Chibian, tasting a variety of remedies still no effect, but Wang did not give up the dream of his son recovered. Reporters on the bed to see Wang Xiufeng,peuterey sito ufficiale, walls covered with red couplets. Each one, represents a pious wish: good health.<br> <br>"That one said he wanted to donate the body, I immediately started to cry and his mother." Wang told reporters:. "As long as the son can sit on it Mazar, our home is still intact though that sooner or later there will be a day, However, the annual Spring Festival, we will ask a 'healthy' couplets, posted on his son bedside, for children,http://vegalta7.s156.xrea.com/aska/aska.cgi/summary, this is an incentive for us, and that is the biggest wish.<br> <br>They donations for the disaster area<br> <br>Probably more than you<br> <br>May 16, 2008, for the earthquake donated 2000 yuan; February 5, 2009, the Sichuan Charity Federation donated to 300 yuan; April 22, 2010, for the Yushu earthquake donations 2000 yuan ...... eyes a picture of the donation certificate and a certificate, let reporters surprise moving.<br> <br>Speaking of these donations, Wang actually look calm. "After so much, we also want to open slowly, the money this thing, students do not bring already naked. Spend son, but to no avail, it is better to donate for the disaster." Huyun Rong said, adding that in 2009 the 300 yuan donation, Linyi local civil affairs departments to rescue the family's money, "My son is now cold body, can not let the other children cold wronged."<br> <br>What is "getting cold"?<br> <br>"Getting cold" and the disease is a motor neuron disease (MND) are known, the most common type of amyotrophic lateral sclerosis (ALS), characterized by progressive muscle weakness and atrophy systemic. More simply, the patient is responsible for muscle movement of nerve cell death, and these nerve cells can not regenerate, once the number of injuries more than 50% may occur muscle atrophy symptoms. Early onset occurs palms of the hands and other parts of muscle atrophy, gradually to the forearm, upper arm development, upper limb muscles dance movement, walking was "cut" step, gradually limb weakness, further development until paralyzed, respiratory muscle weakness leading to respiratory failure .<br> <br>Cause of the disease is not yet clear, preliminary findings resulting from the multiple causes genetic factors, factors poisoning, viral and immune factors. 90% of "getting cold" and in five years the incidence of death, thus "getting cold syndrome" was listed as one of the World Health Organization and AIDS, cancer and other terminal illness tied five, about 20 million patients in China. For "getting cold" and for the most brutal, the consciousness is fully awake, she watched their increasingly unable to move,http://www.szsicame.com/home.php?mod=space&uid=5259, unable to breathe, and eventually even to die are powerless.<br><br>

    Posted 10 years ago #

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