<br>Xinhua Hangzhou, July 6 (Reporter Yang Xiaofei) 12-year-old is the carefree children thrive age is full of hopes and dreams for the future bloom, but for Xiaoshan District of Hangzhou 12-year-old boy Bowie Wu Yi to that lie in front of him is bound to be a bumpy road of life. Because of suffering from the disease, he did not pain, not sweating, hot weather brought him not only heat,woolrich outlet, but also a threat to life.<br> <br>12 years have not had a drop of sweat<br> <br>Hangzhou scorching sun in early July, it has been for several days the temperature reached 35 degrees Celsius, the hottest is entering a period of one year. Hot weather for most people it's just a headache, but Xiao Feng Yi, who is a choke in his throat paws, at any time you may want to kill him, because he was suffering from a very rare disease: congenital pain anhidrosis.<br> <br>Due to congenital genetic disorder, Xiao Feng Yi 12 years have not had a drop of sweat, if the case of continuous hot weather,tn reuqin pas cher, he was unable to take the step of the air-conditioned room,http://www.styfcar.com/home.php?mod=space&uid=20701, otherwise it will cause temperature rise and life-threatening. "He drink a lot of water to lower body temperature, the body of water thanks to the urine, so the urine once every five minutes going." Xiao Feng Yi's mother Gao Lijuan uncomfortable to say, "Some day,http://www.middleeast.org, at night, because of the need stop drinking non-stop to urinate, could not sleep, rest very well every day. "<br> <br>Past Xiao Feng Yi home without air conditioning, the couple in order to Xiao Feng Yi cool, tried a variety of ways: during the day he took his son to the mall supermarket summer, home to Xiao Feng Yi kept bath; night, Dad Huzhi Ren motorcycle car out for a drive with Xiao Feng Yi, because cool motorcycle will open up after he felt a lot more comfortable. Xiao Feng Yi, a few years ago they installed air-conditioning, a temporary solution to the problem of cooling the hot days, and now the couple are most worried about is the risk of blackouts.<br> <br>High temperature is not the only threats to Xiao Feng Yi life. Reporters saw at Xiao Feng Yi home, this may look strange with their peers is not the boy who wrapped gauze multiple knee has swollen side bigger than the fist bag, scarred skin, whether it is how going on? Gao Lijuan explains Xiao Feng Yi because not feel pain, so the lack of self-protection awareness, there are often falls,piumini moncler, bumps, burns, and sometimes even "self-mutilation." "After the hot weather, easily inflamed wounds fester, every day we have to give him change gauze to clean the wound."<br> <br>"As long as there is hope alive."<br> <br>Bowie Wu Yi's father Huzhi Ren told reporters: "In Feng Yi 6 years ago, we discovered that he was particularly sensitive to heat, especially in the summer Shihai often fever, we thought he was just a weak constitution,http://acc06.cn/news/html/?44139.html, but he went to the hospital many times prone fever situation has not improved, then the number of frequent we feel may have another cause. "<br> <br>Xiao Feng Yi only had a short time on school, dropping out of school was found only after the sick at home. 2008 began with a couple Huzhi Ren Xiao Feng Yi traveled to major hospitals in Hangzhou, Shanghai and Beijing, hoping to find a cure for Xiao Feng Yi's method, however,http://www.srg77.com/ono/search/bbs/apeboard_plus.cgi?command=read_message&msgnum=15/, was only the harsh reality - again and again disappointed. "The doctor said my son was painless congenital anhidrosis in the world so far no cure, only thing to do is to protect Xiao Feng Yi does not hurt,woolrich outlet milano, in the hot weather in time to help him physical cooling. "Gao Lijuan frustration.<br> <br>A few years ago Huzhi Ren Xiao Feng Yi couple with continued medical treatment when Dr. Zeng You assert that these children live only 8 years old, and now Xiao Feng Yi has been 12 years old, what is supporting this simple couple will raise Xiao Feng Yi I grew up in it? "The doctor told us that this disease is incurable for now, we can only accept this reality, but we never thought of giving him, he is my son, ah,http://buntyn.stamina.jp, I think as long as there is hope alive." Gao Lijuan eyes pan with tears.<br> <br>"Now every day I look after him, to prevent him from injury, in addition to he changed the gauze, feeding him drink plenty of water, kept clean to clean the room." Gao Lijuan represents years of nursing she had been considerable psychological pressure to produce the obsessive. "After a while I will place your reporter touched with disinfectant to clean it again, you are not too dirty,http://www.wdmjw.com/home.php?mod=space&uid=214590, but I always feel that as long as the room again clean and some sick children, the chance of wound infection is reduced number. You can protect him only to me, as a mother I will do everything to protect him! "<br> <br>When asked about the future of Xiao Feng Yi what to expect when Gao Lijuan thought for a moment and said gently: "I only hope that children can safely live, then one day medical standards developed, I was able to find a cure for sick children The way I look forward to that day. "<br> <br>Will minimize the risk of power outages<br> <br>Gao Lijuan 24 hours at home, look after Xiao Feng Yi, the family's income mainly depends Huzhi Ren early 2000 yuan monthly salary. Xiao Feng Yi replace the gauze and ointments monthly fee to more than 1000 yuan, coupled with the summer air-conditioning electricity costs, the family economy is very tight.<br> <br>July 5, Xiaoshan District Power Supply Bureau Xiao Feng Yi understand the situation through the local media, act quickly, the Xiao Feng Yi home communities where the circuit is set to "key protection", you can get the same hospitals and other key units treatment,http://www.onelovenet.com,moncler Outlet, will minimize the risk of blackouts. Meanwhile, Xiaoshan District Power Supply Bureau also allocated funds from poverty in 8000 yuan, buy a generator imports from service team members as Xiao Feng Yi home free home installation, to ensure that Xiao Feng Yi home 24 hours without power.<br> <br>Xiaoshan District Power Supply Bureau spokesman Chen Xiong said: "We know that the child's situation, the Bureau Party to a meeting to discuss issues related to research, and then decide both from the power supply and backup power protection in case of emergency, to ensure that small Feng Yi's life is not threatened blackout, do our best to protect a child's life. "<br> <br>Youth League secretary Zhang Xiaoshan District Power Supply Bureau to couple said: "You say to our help very moved, in fact, you first moved us you do not abandon the child to life is not giving up,http://namaste-foods.com/?pid=34563880, deeply touched us all. Bit staff, we sincerely wish Xiao Feng Yi healthy growth. 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a few years ago they installed air-conditioning
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