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sofa placed beside the bright windows

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Started 10 years ago by nkaro528316

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 Our reporter in construction & nbsp; & nbsp; Beijing Nancheng an ordinary residential area, located on the 6th floor room not how decoration, sofa placed beside the bright windows, 54-year-old Li (pseudonym) head was a rope tow forward, there is a continuous flow down the appliance and then she saliva at the mouth. Reporters watching the arrival, Li smiled. Her daughter smiled and said to his mother:. "Reporters look at you, you are our female version of Stephen Hawking," Li still laugh. Li is a getting cold. Amyotrophic Lateral Sclerosis disease is the movement of people neuron disease, learning called amyotrophic lateral sclerosis (abbreviated ALS). This is a vicious disease, as its name suggests,http://evenset490.seesaa.net, was the snow frozen portrait sick as any loss of ability to act, but this process is not fast, but slowly the body part by part to atrophy and weakness. Today is the legs, arms tomorrow,piumini moncler sito ufficiale, day after tomorrow to the fingers, even the meager muscles controlling eye movements are no exception, and ultimately respiratory failure. However, all this is getting cold in conscious, occurred under clear thinking, they can clearly watch intently the whole process of his own approaching death. Say the world's most famous people getting cold, and that is the Stephen Hawking. The world-renowned prominent scholars,http://game.cnrjoy.com/bbs/home.php?mod=space&uid=24022, with only a few fingers to manipulate the activity of a special mouse to select letters, words on a computer screen to make sentences, wrote immortal masterpiece "Brief History of Time." According to the Chinese Medical Association to incomplete statistics, China has about 200,000 people getting cold. They face not only the inability of the body, the spirit also need attention. June 21, will usher in the world's getting cold man-days. Let us approached them, they gradually melt frozen hearts. Pathogenesis Found so as not to put into effect Doctors can not say three to five years Search people getting cold is not easy. Reporter through QQ group, the Chinese Medical Association,http://eiga.yokkaichi.org/sunbbs2/sunbbs.cgi?mode=form&no=1997&page=%22, statistics and other contacts, and ultimately to find Li. Her request is anonymous and do not take pictures. Li's husband and daughter actually very calm: "We are in an interview, is to know there is such a group in the community, so that everyone would care concern." Li crooked sitting on the couch, if not the head is a rope tow, her head would droop, because the muscles had atrophied neck, can not be supported. Leaving her uncomfortable, she has now lost the language skills. "She used to love to love to laugh, how did not think was on this disease." Li's daughter looked at the photo on the wall of parents trance, it was her parents' youth photos, handsome father,http://cherokee.main.jp/joyful/joyful.cgi?mode, my mother delicate. And now my mother lives can not take care of themselves, but also because my father worked day and night tired filling. 5 years ago, Li began to have signs of the disease, "then she gave a bicycle pump, how can so do not hammer, then did not care how, later in various parts of the muscle atrophy, went to the major hospital, Later they said that this disease, "Li's husband was all about to fall down that day, because the doctor said," could not pass three to five years "now recall this period, Li's husband is very pleased:.". She insisted was pretty good , which have over five years. "Although Li is like a baby to take care of, but they are still very happy together, a family of three. "We live on the sixth floor, no elevator, but every weekend, me and my dad have to put my mother carried down, go around the supermarket, she can be like shopping." Li's daughter was very thin, but her own mother , the strength is amazing. In order to give Li a doctor, they had also had to rent, "1500 yuan a month, how is a revenue." Li's husband said, but later lived in the cottage life inconvenient, they bite the bullet and moved back building. In the early stages of treatment, Li even thought about jumping subway, "she just did not want to hurt us." "This disease is most frightening is irreversible, and what are now delaying medication treatment life." Li's daughter talking about these, and eyes staring out of the window. Currently, Li is the recipient of Chinese Physician Association, "getting cold heart melted" charity project, nearly 4,http://www.pizza-lafo.de,000 yuan monthly drug temporarily provided by the project, but this aid is about to expire. "We are Zaguomaitie, this drug also have to eat, slow day is one day." Li's husband looked at once beautiful wife, he knew that they were destined to be together forever, "although sometimes think, how is our home stalls this disease. " Depends on family fumble Nanny saw all waved, said quit Look after Up to two or three times every night stand lover, Li's husband has become accustomed to this day. But nearly 60 years old, he clearly felt the energy as before, "before she from a dynamic time, at least I can sleep a wholeness, not now, in the evening to finish her turn behind, I can not fall asleep quickly." How to take care of people getting cold is a new topic, for Li the family, everything is carried out in the dark. "We would particularly like getting cold by the common families can meet, exchange about how to take care of the patient, after all no one encountered this disease." Li's husband said, once he was particularly tired, bite the bullet and find a nanny, But the nurse came to see Li, it represents Waving quit. Li also volunteers came home, but only to help clean up, "busy as a one day left." Thus, Li's husband and daughter groped various methods in practice: "header can not always bowed, we tugged on a rope; old saliva flowing, we used to hang around the neck of a container and then; There shampoo can put a headband hair Longzhu, shampoo will not flow to the face ...... " For people getting cold, the latter will gradually lose swallowing function. Li's husband in particular that:. "Gastrostomy surgery if done early,doudoune moncler femme, we must make early, so watering can be directly fed into the stomach, or from the mouth to feed, would choke" Similarly, for people getting cold,http://www.ko-mens.tv/news/search.cgi, the latter part of the breathing will become a problem, the ventilator essential. Chinese Medical Association "getting cold heart melted" Project Office of Renhuang Min remind families getting cold: "Respiratory function early use or earlier use." 4000 yuan a month of drugs All of these drugs are not within the scope of Medicare pressure Li's husband now do in retirement procedures, can receive more than 1,500 yuan a month, the unit also gave Li Li issued a pension,http://jfy4ghtuertfy.bloguez.com/jfy4ghtuertfy/4856010/apeboard.cgi, more than two thousand a month, and these add up to a bottle of medicine are not enough money, and This bottle of medicine for nearly 4,000, enough to pay for a month. "We now have to these drugs at their own expense,woolrich outlet italia, because not within the scope of health care." Li's husband said. And spend the costs of ventilator gradually freeze people faced even more difficult. A family member told this reporter in the QQ group,hogan outlet online, his wife is now 20 hours a day are inseparable from the ventilator, "eating like a war, he took off the mask for half an hour,http://store.shopping.yahoo.co.jp/gion/md9742fs-rm.html, he might become the fastest speed of the porridge, noodles like the flow of food to feed her, she was a little slow breath, the ventilator is inseparable from the power supply, if the power outage have to give her chest compressions. "The family said, ventilator spent 30,000 Multiple, every year to spend 2,000 yuan replace your mask and small oxygen tube, which had to pay for their own, but for drugs to get relief, I really do not know how this day that too. Huang Min said, calling for the drugs included in health insurance is the voice of a lot of people getting cold families, the annual "two sessions" They also want to spread out the sound. Chinese Medical Association "melt gradually freeze Heart" project has expanded the scope of relief medicines. Also, the families start to promote home care training, research and development support communication aids, especially for everyday communication difficult patient problem, relevant research experts have developed a patient computer-mediated communication tools. But also to help build the ventilator, wheelchairs and other aids loan programs to reduce the medical burden on patients. Currently the Association also seeks to promote the establishment of "getting cold" and raised funds. Blind Families need spiritual counseling This is a tough battle the whole family East of Beijing Dongzhimen within an office building. Within the Chinese Medical Association "getting cold heart melted," social welfare project office, phone ringing, are getting cold families to consult the phone, "They desperately need help." & Nbsp; now the project has been registered nationwide 3000 patients with basic information, according to conservative estimates, more than 200,000 around the country getting cold, "This is a conservative estimate, a lot of people do not know was that this disease." And in the QQ group, the reporter learned that there are Some people getting cold early do not know what kind of sick, everywhere doctor, but the doctor told them the brightest but it is not the same diagnosis. Some patients even began to believe Youyi. Huang Min stressed that the response to this situation in particular, or to go to regular large hospital for treatment. Huang Min said, the face of this kind can not be cured, I do not know the cause of the strange disease, more often gives the impression of powerlessness, desperation is after people's mistrust. Huang Min also like to join previous sufferers of chat groups, but patients are disgusted Huang Min recommend drug treatment,piumini woolrich, called her a "sell drugs," she gas, but on the back of the group. & Nbsp; & nbsp; Huang Min recalls getting cold families often find her crying splinters, a nervous breakdown, "getting cold and his family by the strong will get this disease is like a family to play together Field tough! "In the opinion Huang Min, in addition to strong support on urgent treatment, care and spiritual support for emotional disorders Amyotrophic family is very urgent matter," In Japan there is a national Amyotrophic Lateral Sclerosis Association, often get together to engage in activities, difficulty getting cold action can help through their contact to the outside of things, but also on the family were getting cold stress relief spiritual counseling. This health care thing and appeals equally important. " Welcome to comment I want to comment Microblogging Recommended | today's hot microblogging (edit: SN026) 

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